Wednesday, January 13, 2010

The Greatest Mystery of Them All

I'm not feeling well... again.  This seems to be a recurring thing with me, but now I'm seeing even more that its a recurring thing with most Celiacs who are also allergics.

Digestive issues (gotta love the vagueness of that symptom) seem to be tied into every auto-immune disease that exists and of course the issues can also be the cornerstone of figuring if gluten is making you miserable or if perhaps you're allergic to something(s).  For some, eliminating allergens and/or gluten from the diet solves everything.  I am apparently not one of those people.  For me, it's always been a combination of all the above.  I chucked the gluten per the doctor's orders, I eliminated my allergens, and in return I expected to never feel ill again.

I share this with you dear reader because I hear every day the reported mystery miseries that seem to plague us all with digestive issues.  For example, most people I have met with Celiac don't just have that, but also have auto-immune complications/symptoms that are indicative of something else or something greater.  And a good 50% of those people have been tested for everything under the sun unsuccessfully.  No one knows what's wrong with them (don't even suggest IBS, which is just code name for we don't actually know what's causing your problems so we'll call it IBS so you feel better about it.)  It's driven many of us to read countless books or take to the internet and try to diagnose ourselves (this will drive you nuts by the way.  I don't recommend it though I won't say I haven't done it at length.)

Medicine has made leaps and bounds over the years, and with the aid of quickly budding technologies, we're learning more and more every day about all sorts of internal functions that we didn't understand before.  But still, I'm being told, we just don't know enough yet...

The things that are making my life difficult right now fall into the category of "we just don't know enough yet."  As I sit here trying to keep a positive outlook on things I ask myself, when will we know?  When will I know how to feel better and function like a normal person would?  When will I have metabolism again and why is there nothing out there that's safe to jumpstart it?  When will I gain my energy back?  When will my digestive system stop declaring war on my body?  The list goes on and on.

I've been to doctors.  I've been to specialists.  And all that I know is that we just don't know enough yet.  I know how hard it is to be patient when you're feeling crappy, but you're not the only one.  It's not your fault, and maybe you're doing everything that you know can be done.  Just hold on, because one day we will know enough.  And I can't wait for that day to come.

*I'm going to a new Gastro next week.  Fingers crossed folks.  I'm going to try and solve this bad boy one symptom at a time, if it's the last thing I do!


  1. oh man! so sorry you're feeling icky again - so not a fun situation to be in. good luck with the new gastro, and I hope that things start looking up.

  2. Nothing is worse than knowing something is wrong, but not knowing exactly what to do to make yourself feel better. Keep trying out new doctors and new things - you're bound to hit on it. Hopefully soon.

    Good luck with the new Gastro next week. Have you been to a Naturopath?